Re: Give the negativity a rest, guys, this is pretty amazing stuff
The idea is fine. It's just that (a) we get it presented with nonsense hype and (b) the NHS and, indeed, the related industries have a trust problem.
I doubt anything will quiet the anti-pharma voices until Darwin reaps them. OTOH the NHS trust problem is one which needs to be recognised and it is entirely of its own making. Taking my own local hospital Trust for instance:
1. They take next of kin contact numbers and then use them as contact for the patient instead. That one has now been resolved.
2. Instead of sending appointment letters or emailing them (I presume email was considered too insecure) they signed up with some 3rd party to hold the appointment details and them send out phishing style emails to get patients to register with the 3rd party to log on to read their communications:
2.1 They now have given PPI information to a 3rd party without even seeking the data subject's consent
2.2 If email was too insecure to communicate the appointment why was it used to communicate the instructions to set up the account?
2,3 They are training patients to be phished with the added implication that whoever is responsible is already trained. The response was that because there are posters up about this in the hospital patients would know what it was about; the fact that until the patient has received the appointment invitation and visited the hospital they wouldn't know was overlooked.
3. They have engaged another 3rd party to enable patients (even ex-patients of a few years ex-dom) to see their records online and sent out phishing style emails to invite (ex-)patients to ...OK, you know the rest.
Having received complaints about the two phishing style emails they then sent out an email relating to the patient-records thing saying more or less what they should have said in the first place so maybe the phishing style emails issue has been resolved. What's not clear about that arrangement is whether they'd already transferred the patient records to that 3rd party or would only do so after the patient set up the account. My guess is that they'd already sent them.
I have no doubt that all this was well intended. It's just lack of understanding of the need for or knowledge of how to do these things properly that erodes trust.