Re: Money for data
NHS Digital no longer exists. Same as NHS-X. It's all now just NHS England.
172 publicly visible posts • joined 22 Nov 2009
Quite a few confused issues in the above post.
1) this is a federated platform not centralised.
2) pseudonymisation is relevant specifically for research or other secondary use of data. For operational or clinical needs which is where the FDP sits the data needs to remain identifiable. So your points (1), (4-6) are not relevant because they all pertain to research.
3) hacking is a risk with any system. Are NHS-managed systems more or less secure than palantir?
Not at all defending the Palantir FDP, but your points aren't where the problems are.
The manuals, ha!
I remember the MySQL documentation was great before Oracle took over. Search worked reliably and you could relatively quickly find what you wanted.
When Oracle took over the searches were random, usually found the wrong version and the wrong language. Accidental? Not by a long way.
F*cking shysters.
And not in a good way.
Others have highlighted several significant problems, and this is another one:
"The statistical Student’s t
-test was performed on the extracted radiomic features to identify those that are significantly different between the healthy and pre-diagnostic groups. About 4.5% of the total number of extracted radiomic features showed significance at a p-value of 0.05."
Which is no better than you'd expect at random and is the subject of an XKCD cartoon. https://xkcd.com/882/
This is actually an astonishingly bad example of ML and is likely just a random result. Why are El Reg publicising this crap?
Nope. downvoter here. It's because the statement is bullshit. Data governance controls here are very strict. Selling patient data would not be acceptable under any guise whatsoever.
It also would be useless to US Insurance Companies. Why would they want data on a population that is not their customer base and interacts with healthcare in wholely different way?
You're scaremongering.
It's funny how we are all very keen to learn from the positives we've experienced during COVID (e.g. less travelling, WFH), but why shouldn't continue in the health domain.
We shouldn't go back to where data is held back simply in principle. The benefits for research and ultimately patient care are obvious and have been shown through COVID, so why not continue it in a safe and regulated manner. Which it will be. There's no "data grab" to do whatever you want with the data, it's a process for enabling access when justified on scientific, legal and ethical grounds.
Scotland already holds national-level data which can be made available for research. It lacks the level of detail available from regional data, however.
If you think hospital data is any better than the "quirks" in GP data, then I've got a surprise for you. There are no standards and there's no consistency between regions, boards or trusts.
I decided to move our joint account from smile to Starling a few months ago. To me, Smile just felt stagnant and unloved. Their revamp a few years ago was awful and made the website even more clunky than before.
The account is still open with a notional balance, but won't be for much longer.
These SNAFUs are getting too common. I was with RBS when they had theirs, then TSB and now Smile. Is it me?
The key aspect many OSS project fall down on is training and support. In order to gain traction the project must get support front and centre. No large organisation is going to deploy core software without a long term plan for managing updates and upgrades.
This is where the brand factor wins big. You aren't going to bet against Microsoft as you know they have been around for decades.
I have huge respect for NHSbuntu: it is the right way to do this. It is what the NHSIT debacle of 5-10 years ago should have been. Can you imagine what an OSS project with £10bn could have achieved?
Then set up the do not disturb feature on your phone. It's built-in on iOS and I used to have it on Android, although I can't remember if it was an app or not.
The SOP is that it won't notify you when someone calls or texts you, but will if they do it repeatedly within a short time window.
Ring fencing is one thing, which should be applauded. However, post brexit we're facing at least a £3bn loss in funding. What's UK Gov going to do about that?
This is on top of the fact that the UK has one of the lowest levels of science funding per GDP (1.7%) amongst leading nations (below EU average and massively behind USA) and has dropped since 2009.
Core academic funding is critical for innovation, creativity and manufacturing. If it gets squeezed any further the whole country will suffer.
"Our universities are funded by fee-paying foreign students, it would be insane to stop that flow"
And yet that is exactly what is happening. EU applications down 9% ...
www.theguardian.com/education/2016/oct/27/uk-university-applications-from-eu-down-9-ucas
The utter joke about Brexit is that it was about 'control'. We have actually lost control, not gained any. Epic, epic, fail! The government know this and are pissing about trying to avoid telling us.
We're going to get screwed by the EU, because they can and need to in order to stop it falling apart and there's bugger all we can do about it. Welcome back to the British 'glory years' of the 70s - 3-day week, no bin collections and hyper-inflation.
Forgot to add.
Lack of internet is a red herring. Proper password managers keep your passwords file locally - no internet required. you just need to sync it automatically when you do have internet.
If you want access to secure sites on hardware that you don't own or trust, then more fool you.
Given that currently the single point of failure is the user, anything that avoids them either using weak passwords or reusing the same password, is a big win. Password managers make it trivially easy.
With the better password managers allowing you to keep your file on Dropbox, icloud, etc any miscreant has to crack one round of 2FA plus the database file's encryption.
No silver bullet, maybe, but certainly silver plated IMO.
I was a hardened Firefox user (almost non-stop since Phoenix days), in the last six months its performance had tanked.
Viv is a breath of fresh air. Lightweight, fast and clean. It's been my primary browser at work on Mac and at home on linux for about two months.
As others have said better control of pdf handling would be good.
...but ubiquitous banking apps on mobile phones is a disaster in waiting.
Plus, I doubt it'll do anything that the CMA claims it will.
Maybe people aren't switching because, on the whole, UK banking is very good? I've only ever moved to take advantage of deals not because of bad service.
I don't think I've ever worn a digital watch. Much prefer analogue dials. Including my Withings Activite pop fitness tracker I wear these days.
Analogue watches are often fashion accessories with prices far above those of the Apple Watch. I have a Longines automatic which cost about twice an iWatch, but will last a darn sight longer!
This needs to be thought through properly. The publishers are currently pushing up prices for gold OA, so instead of making money on the subscriptions they now make money by charging to publish.
Any new rules need to enforce green OA where copyright is retained by the authors and can be made freely available upon publication.
Charging over 2k to publish a pdf document is extortion.
Twitter gets bad press for being full of trolls and fire being superficial. Although I don't disagree there are those elements, it isn't unique on the internet.
I use Twitter a lot for keeping in touch with others in my field of science and what they are up to or thinking about. The traditional scientific publishing model is broken and social media is more attuned to how we want to communicate our work. Quickly, easily, to our peers and the wider community.
Hashtags are an extremely efficient way to follow conferences that you are not able to attend in person.
Conciseness is a strength of Twitter, breaking that will make it fail.
my next phone is going to be of fruity variety (no, not a Blackberry).
I made the mistake of buying a supposedly supported Moto G from Three and have got exactly ZERO updates in over a year. This is despite the fact that Motorola are releasing updates.
The Android patching model is fundamentally broken and Google/manufacturers/networks don't care.
"The more rigorous testing regime required before an iOS app can be published has always been considered to be the reason for this difference, but in this case it seems to have fallen short."
Although the above statement is true, how do we know that the Play Store isn't similarly affected? Has anyone thought to do a similar scan there?
There an even easier solution than depending on the cooperation of supermarkets, whose interests are opposite so yours: make you're own bleeding food!
This way you can make whatever size you want.
Christ. This kind of research only gets airplay because of 'Cambridge'. I'd bet if it had come out of any other Uni (except Oxford) it would have got the attention it deserved: none.