"Our data is already bought and sold for profit. And we love it."
It's a bold move to start an article with such an obvious untruth.
At most the article argues for people with rare conditions to be allowed to share their data - which nobody is arguing against - so that there will be research into these conditions - but the article doesn't say how the first would lead to the second. Pharmacy companies aren't interested because there is no profit. University research is poorly funded. If there is a drug for common condition A that treats rare condition B then you still need a company to manufacture it.
Biting the hand that feeds IT
