Sorry, you're betting on the wrong horse
While I have sympathy and wish you well, the assumption sharing data = more research is a fallacious one. So fallacious one could even consider it an all-purpose weasel argument along the lines of "you cold-hearted bastards, would you deny me salvation?".
I'm sorry, but as others already said, sharing your data won't cure you, all it will do is increase your insurance costs and prevent you from getting credit. What would actually help you is research, but that's a wholly different kettle of fish and has nothing to do with selling out peoples' health records. Research doesn't suffer from lack of population data, it suffers from a lack of funds and, for the pharmaceutical industry, the corporate will to tackle the commercially less interesting conditions.
Don't let your concern blind you, you're betting on the wrong horse here. This is unfortunately not the hope you're looking for.
Biting the hand that feeds IT
