Reply to post: Re: Trust is earned

NHS patients must be taught to share their data, says EU lobby group

Doctor Syntax Silver badge

Re: Trust is earned

Just that. And governments everywhere are doing the exact opposite of what they need to do to earn it. How long is it going to take for them to realise this?

First earn trust by accepting that past behaviour is wrong and stopping it. That means more than having a tribunal tell you that you were wrong in the past because you were misusing legislation. That idea of "wrong" can be fixed by continuing to do the same under different legislation. It wasn't wrong because of the legislative framework, it was just wrong. So TPTB need to recognise that, publicly acknowledge it, apologise, and stop it.

Then start afresh. Make the data protection principles the basis of all handling of personal data. Share data only with specific informed consent. Give feedback to data subjects as to when and how data is shared. Make it a condition that when data is shared under consent it cannot be further shared without new specific informed consent. If this is breached each data subject should be entitled to a payment sufficiently large to make such breaches unprofitable with damages where the data subject has suffered actual loss as a consequence (e.g. medical history passed to an insurance company that then raises rates).

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