Fuck. Right. Off.
Oracle is planning to build a national database of individuals' health records for the whole United States following its $28.3 billion acquisition of electronic health records specialist Cerner. In a presentation, CTO and founder Larry Ellison said electronic health records for individual patients were stored by hospitals and …
Palantir or Oracle or Epic
The irony is that we have some much better quality UK-grown IT systems like Nervecentre, but because of serial mismanagement of NHS IT, the big US players are crowding out the UK ones.
Incompetence, fraud or malice? sometimes difficult to tell in the NHS
I don't give a fsck about the for-profit healthcare if they're run into the ground through incompetence.
I do care about the government-run healthcare system.
Stopping politicians from having cushiy 'jobs' on the board of directors of these companies would probably go a long way in preventing 'incompetence' in government-run healthcare.
I'd forgotten about that. Great point.
"As part of the proposal, the Obama administration intends to give $130 million to the National Institutes of Health (NIH) to build a database of records that will include biological samples, test results, medical histories and genomic profiles of a million or more Americans."
Quote: "...data in the national health database as records would be anonymized..."
Dear Larry......this statement is simply FALSE....pure misdirection!!!! Have a read of this:
- Link: https://www.theguardian.com/technology/2019/jul/23/anonymised-data-never-be-anonymous-enough-study-finds
What next? Peter Thiel says that "personal privacy is the primary goal at Palantir"...................I don't think so!!!!
A quarter-century ago, the state of Massachusetts (USA) released anonymized hospital visit records to any researcher who wanted them.
A graduate student promptly sent Governor William Weld's records to him.
(Accounts of the exploit are everywhere on the Net; search "William Weld re-identification".)
I think it is fairly uncontroversial that collecting medical data in population size chunks can help provide much improved understanding of human biology and hence advance medical science. This has to be a good thing in my opinion.
So the two questions that need answering are:
1) Who would you trust to do this?
2) How would you safeguard personal privacy whilst providing the benefits to all in society?
The article does not recognize the impact of items such as 'schedules of billable illnesses', standardized device delivery models, and formal constraints on professional communications with general practitioners.
It is somewhat quixotic to imagine that in the local environment, individuals can expect service delivery to address underlying cause rather than a palliative response to their symptoms.
In the Spanish serial novel, Don Quixote, the Don and his sidekick Sanchez have adventures. Sanchez supports Don Quixote until the Don wishes to raise the status of a serving wench into independent responsibilities, and that is where the novel ends.
Maybe Don Ellison imagines frontline service delivery as his Dulcinea.
A review of other posts can appreciate the fierce passion of will to keep domain specific language, describing variations on the human architype, outside the public domain.